Contact Us

We're here to help

Contact Us

Sponsor

17q12 Foundation
www.chromo17q12.org/
2407 SE Delaware Avenue #1006 Ankeny, IA 50021

Registry Contact

Liz Fourie, Margo Casados, Allaina Wellman
info@chromo17q12.org
515-329-5877

IRB

North Star Review Board
https://learningirb.org/
info@northstarreviewboard.org

Social Media

17q12 Foundation | Facebook
17q12 Foundation (17q12foundation) | Instagram
17q12 Foundation (@17q12Foundation) | Twitter
Join our mailing list at chromo17q12.org.

Visit the National Organization for Rare Disorders home page at rarediseases.org.

Institutional Review Board (IRB)

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board.